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Discharge Planning Guide
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NORSE INSTITUTE
About
About Us
About NORSE & FIRES
Medical and Scientific Advisory Board
News
Contact
Medical Professionals
Research
NORSE Scientific Symposium
Diagnostic Evaluation
Patient Resources
Patients & Families
NORSE Family Conference
NORSE & FIRES Family Meeting
NORSE Family Registry
Find a Doctor/Medical Center
Navigating NORSE
Discharge Planning Guide
Donate
Folder: About
Back
About Us
About NORSE & FIRES
Medical and Scientific Advisory Board
News
Contact
Folder: Medical Professionals
Back
Research
NORSE Scientific Symposium
Diagnostic Evaluation
Patient Resources
Folder: Patients & Families
Back
NORSE Family Conference
NORSE & FIRES Family Meeting
NORSE Family Registry
Find a Doctor/Medical Center
Navigating NORSE
Discharge Planning Guide
Donate
NORSE Family Conference Recording – Medical Updates & Improving Doctor-Family Communication (June 2025)
Family Conference Katie Di Feliciantonio 6/11/25 Family Conference Katie Di Feliciantonio 6/11/25

NORSE Family Conference Recording – Medical Updates & Improving Doctor-Family Communication (June 2025)

Watch the full recording of the NORSE Family Conference held on June 4, 2025, focused on sharing medical updates, improving communication between families and clinicians, and creating space for lived experience.

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NORSE/FIRES Family Conference: Research Updates, Transition of Care, Post-Intensive Care Syndrome
Family Conference Katie Di Feliciantonio 5/22/24 Family Conference Katie Di Feliciantonio 5/22/24

NORSE/FIRES Family Conference: Research Updates, Transition of Care, Post-Intensive Care Syndrome

This virtual conference brought together experts, families, and clinicians to share the latest updates in NORSE/FIRES research and care.

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2023 NORSE Institute Scientific Symposium and Family Conference Recordings
Scientific Symposium, Family Conference Katie Di Feliciantonio 6/13/23 Scientific Symposium, Family Conference Katie Di Feliciantonio 6/13/23

2023 NORSE Institute Scientific Symposium and Family Conference Recordings

These recordings from the 2023 NORSE Institute events offer insights into current clinical care practices, family experiences, and emerging scientific research on New-Onset Refractory Status Epilepticus (NORSE) and Febrile Infection-Related Epilepsy Syndrome (FIRES).

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2022 NORSE/FIRES Medical & Family Conferences — Recordings and Consensus Definitions
Family Conference Katie Di Feliciantonio 6/22/22 Family Conference Katie Di Feliciantonio 6/22/22

2022 NORSE/FIRES Medical & Family Conferences — Recordings and Consensus Definitions

The NORSE Institute’s second annual Medical and Scientific Symposium alongside the NORSE/FIRES Family Conference took place virtually on June 15 and 16, 2022.

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©️ 2025 Norse Institute, is a 501(c)(3) charitable organization through the fiscal sponsorship of CURE Epilepsy.

Please Note: The NORSE Institute shares information to support rare disease research and awareness. The NORSE Institute is not a medical provider or health care facility and thus can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments. Patients must rely on the personal and individualized medical advice of their qualified health care professionals before seeking any information related to their particular diagnosis, cure or treatment of a condition or disorder.