Welcome to our Resource Library
Here you’ll find a collection of videos, podcasts, and research papers exploring New Onset Refractory Status Epilepticus (NORSE) and its sub-type, Febrile Infection-Related Epilepsy Syndrome (FIRES).
NORSE Family Conference Recording June 2025
Watch the full recording of the NORSE Family Conference held on June 4, 2025, focused on sharing medical updates, improving communication between families and clinicians, and creating space for lived experience.
NORSE/FIRES Family Conference May 2024
This virtual conference brought together experts, families, and clinicians to share the latest updates in NORSE/FIRES research and care.
2023 NORSE Institute Scientific Symposium and Family Conference Recordings
These recordings from the 2023 NORSE Institute events offer insights into current clinical care practices, family experiences, and emerging scientific research on New-Onset Refractory Status Epilepticus (NORSE) and Febrile Infection-Related Epilepsy Syndrome (FIRES).
2022 NORSE/FIRES Medical & Family Conferences — Recordings and Consensus Definitions
The NORSE Institute’s second annual Medical and Scientific Symposium alongside the NORSE/FIRES Family Conference took place virtually on June 15 and 16, 2022.