News
NORSE Family Registry to Close at the End of 2025
The international registry, hosted on the REDCap online platform, will officially close in December 2025. Families and patients who would like their experiences included are encouraged to enrol before the deadline.
NORSE Prospective Study
Clinical data and biological samples (serum, CSF, tissue) are being collected.
New ILAE Podcast Sheds Light on NORSE: Interview with Dr Ronny Wickström
Dr Ronny Wickström, MD, PhD, from Karolinska University Hospital in Sweden, shares expert insight into New-Onset Refractory Status Epilepticus (NORSE).
International NORSE Consensus Recommendations Published
A collaborative research initiative involving 48 international medical experts has resulted in the publication of “International consensus recommendations for management of New Onset Refractory Status Epilepticus (NORSE) including Febrile Infection-Related Epilepsy Syndrome (FIRES): Statements and Supporting Evidence.”
Join the Growing NORSE/FIRES Online Community
Join our private Facebook group for people living with NORSE/FIRES and their loved ones to connect, share experiences, ask questions, and support one another.