Resources for your Patients

While patients are in the ICU, their families are often overwhelmed by the acute, surreal situation of NORSE. Having someone to talk with who knows the experience of waiting for the uncertain outcome of NORSE can be helpful.

Listeners are matched to family members asking for a sympathetic ear. Listeners do not offer medical advice, simply the willingness to listen while the family members vent their anguish and repeat the details of the illness. Finding the words to tell their story helps the family to process the seemingly unreal situation of NORSE.

Families can request a listener on the contact page.