2023 NORSE Institute Scientific Symposium and Family Conference Recordings
Summary:
These recordings from the 2023 NORSE Institute events offer insights into current clinical care practices, family experiences, and emerging scientific research on New-Onset Refractory Status Epilepticus (NORSE) and Febrile Infection-Related Epilepsy Syndrome (FIRES). With contributions from leading clinicians, researchers, and families, these sessions are a vital resource for anyone seeking to better understand NORSE/FIRES and the path forward in care and research.
NORSE/FIRES Family Conference
Date: June 6, 2023
Recording: Watch on YouTube
This virtual event centers the lived experiences of NORSE/FIRES families. It includes personal stories, updates on family-led advocacy, and discussions about improving communication and long-term care support for survivors and their caregivers.
Medical & Scientific Symposium
Date: June 7, 2023
Recording: Watch on YouTube
This symposium covers the latest medical findings, clinical approaches, and research priorities in the field of NORSE and FIRES. Topics include treatment protocols, diagnostic challenges, immunotherapy advances, and updates on collaborative research efforts.
