Medicaid Waiver Programs: Long-Term Support After Acquired Brain Injury
Overview:
Medicaid waiver programs can offer essential insurance coverage and home-based services that many NORSE patients would not normally qualify for due to income limits. These waivers especially those designed for individuals with acquired brain injuries (ABIs) may "waive" income requirements based on diagnosis and care needs.
Administration of these programs varies by U.S. state. Families are encouraged to search online using the terms:
“TBI/ABI Medicaid waiver programs in [your state]” to explore available options.
Included in this resource:
A state-by-state guide to insurance and waiver programs, originally created by the Angelman Syndrome Foundation and shared here to benefit other rare and severe neurological conditions
A federal directory with links to Social Security, Medicare, Medicaid, Veterans programs, and Eldercare initiatives
Information on private foundation grants that may help cover specific medical expenses
