Welcome to our Resource Library
Here you’ll find a collection of videos, podcasts, and research papers exploring New Onset Refractory Status Epilepticus (NORSE) and its sub-type, Febrile Infection-Related Epilepsy Syndrome (FIRES).
Hospital Discharge Planning Checklist
The following is a guide to resources that can help patients and their families move forward across a range of situations.
Bereavement Guide
Created by the Epilepsy Foundation, this guide offers information for those who have lost a loved one to Sudden Unexpected Death in Epilepsy (SUDEP) or other epilepsy-related causes.
NORSE Glossary of Terms
The following are terms that may come up in your conversations with medical staff that you should know.
Medicaid Waiver Programs: Long-Term Support After Acquired Brain Injury
Medicaid waiver programs can offer essential insurance coverage and home-based services that many NORSE patients would not normally qualify for due to income limits.
Communication Challenges in NORSE
This article, published in Mayo Clinic Proceedings (May 2019), explores the unique communication challenges that arise when supporting patients and families affected by New Onset Refractory Status Epilepticus (NORSE).