NORSE Scientific Symposium Recording June 2025
Summary:
Watch the full recording of the NORSE Scientific Symposium held on June 3, 2025, focused on early recognition, diagnosis, and treatment of NORSE (New-Onset Refractory Status Epilepticus) and FIRES (Febrile Infection-Related Epilepsy Syndrome). This virtual event brought together leading international experts in neurology, immunology, critical care, and patient advocacy.
Chaired by Dr. James J. Riviello, Jr. (Baylor College of Medicine, Texas Children’s Hospital), the symposium covers:
Clinical features and differential diagnosis of NORSE/FIRES (Dr. Ronni Wickström, Karolinska University Hospital)
Biomarkers and emerging diagnostic tools (Dr. Raquel Farias-Moeller, Children’s Wisconsin & Dr. Yi-Chen Lai, Baylor)
Mechanisms of refractory status epilepticus and treatment approaches (Dr. Nicolas Gaspard, Hôpital Erasme - ULB)
Promising immunotherapies, including intrathecal dexamethasone and novel treatments (Dr. Kristen S. Fisher & Dr. Eyal Muscal, Baylor)
Prognosis and family communication strategies (Dr. Krista Eschbach, Children’s Hospital Colorado & Lakshmi Damerla, parent of a FIRES survivor)
Updates on the NORSE/FIRES Biorepository and the PCORI-funded research study (Dr. Larry J. Hirsch, Yale)
