News
2026 NORSE SCIENTIFIC & FAMILY SYMPOSIUM (VIRTUAL):
From Acute to Chronic: How to Tell? What to Do?
Recordings available now:
DAY 1 · TUE, JULY 14. Acute to Chronic — Where’s the Line?
Clinical features of Acute vs Recovery Phases and Evolution of Biomarkers across the Phases
Part 1: https://youtu.be/mbDlGA3c42o
Antiseizure & Immune Therapy and Physician-Family Communication
Part 2: https://youtu.be/-MF0M3C6xfc
DAY 2 · THU, JULY 16. When Do We Change Course?
Treatment De-escalation Decisions, Seizure management: from Seizure burden to Quality of Life
Day 2: https://youtu.be/UskJHb5xKb8
New ILAE Podcast Sheds Light on NORSE: Interview with Dr Ronny Wickström
Dr Ronny Wickström, MD, PhD, from Karolinska University Hospital in Sweden, shares expert insight into New-Onset Refractory Status Epilepticus (NORSE).
International NORSE Consensus Recommendations Published
A collaborative research initiative involving 48 international medical experts has resulted in the publication of “International consensus recommendations for management of New Onset Refractory Status Epilepticus (NORSE) including Febrile Infection-Related Epilepsy Syndrome (FIRES): Statements and Supporting Evidence.”
Join the Growing NORSE/FIRES Online Community
Join our private Facebook group for people living with NORSE/FIRES and their loved ones to connect, share experiences, ask questions, and support one another.