We strive to increase the awareness of NORSE, to stimulate, integrate, and support NORSE research, and to develop a shared community of NORSE researchers and families. Click below to browse our resources.


The NORSE Institute sponsored the first international symposium on NORSE and FIRES on April 5, 2017, in Salzburg, Austria. Co-chairs were Drs. Rima Nabbout, France and Nicolas Gaspard, Belgium. Newly-proposed consensus definitions of new onset refractory status epilepticus (NORSE) and febrile illness-related epilepsy syndrome (FIRES) were presented.  Experts of both pediatric and adult epilepsy populations, critical care, immunology and genetics held a discussion of these new definitions and presented current and future research and NORSE/FIRES registries.  

Update: June 15, 2017.  Listen to an interview of Dr. Nicolas Gaspard on the nuanced changes in the conceptualization of NORSE reflected in the newly-proposed consensus definitions.  We are grateful to Dr. Joseph Sirven, Editor-in-Chief of the Epilepsy Foundation's website, epilepsy.com, for conducting this interview as part of his Hallway Conversations series.