The mission of the NORSE Institute is to increase the awareness of NORSE; to stimulate, integrate and support NORSE research; and to develop a shared community of NORSE researchers and families. Our values are...
Open-minded and unbiased evaluation of research and therapies both within and outside of traditional NORSE treatment
Scientific rigor and transparency
Candid communication with patients and families
TO FIND AN EFFECTIVE TREATMENT FOR NORSE
Effective treatment for this rare and poorly understood disorder is currently elusive. Finding it requires new thinking from multiple medical disciplines and integration of these ideas and research. We hope to stimulate this thinking and explore both the conceptual boundaries of NORSE as well as the practical boundaries of NORSE treatment: long-term critical care, ICU and epilepsy coordination, palliative care, and immune treatments.
We welcome comments and suggestions from medical professionals and patients/families alike.