HOW TO DONATE
At this point, the NORSE Institute is not yet a non-profit organization with tax-exempt status. However, we have partnered with the National Organization of Rare Disorders (NORD), a national, non-profit coalition of patient advocacy groups of rare disorders, to create an account for donations specifically dedicated for NORSE research. These donations are tax-deductible.
Funds donated on this link will be set aside for research on NORSE, but only if the instruction for donation are followed exactly.
After clicking on the link above, you will be led to a Research Program page on NORD. After indicating the amount of your gift, you will see a line: "Research Fund" with a drop down bar that allows you to scroll through a number of rare disorders.
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To insure that your gift is earmarked for NORSE research, you must select "new onset refractory status epilepticus (NORSE)" in the drop down option, and then continue to fill out the form and submit the entry.